Synthroid Stories

Please feel free to post your Synthroid stories on this page.

Here is mine:

My name is Josh Eaton.  I have Hashimoto’s thyroid disease.  It is an autoimmune disease that caused me to develop hypothyroidism.  My story is simple but sad.  Sad because our healthcare is in a sorry state.  I was told by 2 different doctors that I did not have thyroid disease and neither doctor would test me for the disease.  They both said you are not fat and your hair is not falling out.  My sister in law’s sister in law is actually the one who told me “Josh you have hypothyroidism caused by Hashimotos.”  I was scared but I went to a third doctor told her what I wanted and she ran the test.  Yep, Josh you have positive antibodies which means you have Hashimotos and hypothyroidism.  No worries we can treat it with a simple pill called Synthroid.  She told me there were no side effects and I would feel great within a month.  That month came and went.  Started feeling worse.

18 responses to “Synthroid Stories

  1. Pingback: Synthroid……side effects? « Synthroid Haters

  2. Carole Stewart

    AND WHERE SHALL WE SEND THE BODIES?

    It is absolutely unacceptable that the FDA could consider shutting down production of natural desiccated thyroid without a contingency plan for the growing number of U.S. citizens who are natural thyroid dependent and for whom Synthroid/levithyroxcin medications have limited or no effect.

    As as a hypo patient with no thyroid of my own, I have been dependent on natural thyroid for 40 years. First Proloid (bovine natural desiccated thyroid) brought me back from two weeks in intensive care following a Myxedema crisis, and enabled me to care for my 4 small children, a dog, and a garden. With the crushing weight heart, lungs, and bones piled on top of me. I had not been able to speak or lift a limb. For many hours I watched with wisps of black and white vision as the I.V. bag dripped the life-sustaining drug into my body. As I gradually grew more alert, I continued to watch as a medical personnel lifted my limbs and then expressed disapproval at the long-delayed responses. They were not pleased. I remember wondering if I had died.

    For nearly two decades I worked through the remaining thyroid related issues, which included bilateral vocal cord paralysis due to a severed laryngeal nerve from the surgery, and several additional surgeries to cut away arytenoid tissue for increased airway. I resumed my life then, and welcomed every new morning, until the day I went to refill my Proloid prescription only to find out that it was forever gone.

    My medication was switched to Synthroid. When I began in only a short time to backslide, my physician, the same endocrinologist who had made me whole again, told me that all people do well on Synthroid. My physician was wrong. I continued to deteriorate until I scarcely could remember my own name. A new physician had other patients who did not respond to Synthroid. He put me on an appropriate amount of Armour thyroid, and in less than six weeks I was well. I returned to school, and then to work, as my youngsters were now young adults. For 18 additional years I have been completely free of hypothyroid symptoms. I rarely take an asprin for arthritis pain (where once was fibermyalgia), I garden, do yard work, and often work 14 hour days as an executive, a care-giver, a tax paying citizen, wife, neighbor, and incensed voter.

    Today, I am once again forced to fight for the right to live. In a once free and prosperous country where health care choices were made by patients, not government, I can only asked for your prayers for myself and for two of my offspring and two brothers and a sister who also take Armour thyroid because Synthroid is not effective for our particular family genetic makeup. And we in turn will continue to pray for a reasonable outcome for all who have chosen the long tolerated natural desiccated products(an entire century), which of course should go through any necessary approval, but not by throwing away the lives (and livelihoods) of worthy citizens.

    Please get involved and fight for our country!

    • Dear Carole,

      Sorry to hear you have had such a battle. I had been on Armour Thyroid for about 20 years. Just last year my endocronologist switched me to Synthroid because he said that the government had found that the “dosing” of the medication was not accurate. Since I have been on Synthroid I have had heart palpitations. I have asked the doctor about this a couple of times and he tells me that it has nothing to do with the Synthroid. Have you heard of anything like this?
      The other issue I am having is I have noticed that I loose a lot more hair. My levels were just recently checked and were “within the normal limits.” I just can’t seem to put my finger on it, but I don’t feel as well as I did when I was on the Armour – I just seem to have more of a feeling of malaise. I have done some research and found out that the Armour contains both T3 abd T4, whereas Synthroid only contains T4. Have you heard anything about this?

      Sincerely,

      Kelli

  3. Rachel

    That’s really stupid that they wouldn’t test you because you’re not fat or losing hair. I’m 18, 110 pounds (I’ve been the same weight since I hit puberty, and I’ve never been able to gain weight), with a full head of hair and I was just recently diagnosed with hypothyroidism.

    • Daphne

      Rachel, give yourself sometime and by the time you hit thirty you will start your journey to weight gain. You are just like I was. You are too young and too naive to be calling someone else stupid. You must be suffering other symptoms, such as lack of respect, which is due to your depression that may be creeping up on you as well.

  4. Dear Carole,

    Sorry to hear you have had such a hard time. I have been on thyroid medication for about 22 years now. My first endocronologist put me on Armour Thyroid and I never seemed to have any issues with it other than as I got older I would need to “tweek” the dosage. A few years ago I had to switch endocronologist. Last year my new endocronologist told me that he was switching me Synthroid because the government said that they had discovered that Armour’s dosing was not always accurate – in other words, every pill would not necessarily have the same “potency” as the one next to it in the bottle.

    Since taking Synthroid I have had heart palpitations. I have talked to the doctor about this a few times. He has retested the dose and assures me that my heart palpitations are not due to the Synthroid. He suggests I go have my heart checked out. Before taking Synthroid I never had this issue. Have you ever heard of anyone else having this kind of symptom after starting Synthroid?

    The other issue I have noticed since taking Synthroid is I do have more hair loss and have more of a feeling of malaise. Although I am not able to put my finger on it, I just don’t seem to feel as well. Do you happen to know if Armour Thyroid is still on the market?

    Kelli

  5. Cindy

    Daphne, Rachel knows what she is talking about! I’ll soon be 59 — before I started taking Synthroid approx. 3 mos ago I was underweight (5’6″, 114 lbs, which is in my normal weight range) with a very full head of hair, and when tested was found to have hypothyroidism. (Test was repeated at 2 different labs.) After taking 25 mcg of Synthroid for approx. 8 weeks, my weight plummeted to 103. At follow up appointment my doc promptly took me off Synthroid, and will test me again in 6 weeks. Meanwhile, my job is to work very hard at gaining weight!

  6. Audrey

    I also have a hypothyroidism, Synthroid and Levothyroxin has not worked at all for me. In 2005 I had a partial thyroidectomy and two months after the surgery I complained to my doctor that the medication was not working. Now 7 years later I have finally found a doctor who is willing to give me the natural hormone.
    What is wrong with the Healthcare in Canada??? All the so called doctors want to do is give you Synthroid and when that doesn’t work they want to give you anti depressants. Healthcare in Canada Sucks!!!

  7. Cynthia H.

    I am age 54 (2011) and started taking Synthroid in 1993 (at about age 35). The first two years I was sensitive to light, heat, and rarely could go shopping in the summer without serious fatigue. I also would get motion sickness from watching TV or from a computer screen. After taking Sythroid for roughly 2 years, I started feeling better, could actually go out in summer months and feel somewhat normal, etc.

    About two years ago, due to a gap in medical insurance, I hit what I call a “wall.” I was unable to find even a county or low cost clinic where I could get a test and refill for my medication. I went without Synthroid for over 6 months. When I went back on it, about a year ago, I began having chest pain, swollen glands, swollen lymph nodes, and pain in my glands. I thought I was having heart failure or breast cancer. I had three negative mammograms – the first two within 6 months of each other because of the pain I just did NOT believe it!! It had to be something wrong.

    I had them switch me to generic, thinking I would try a different brand to get rid of the symptoms. That did not work. I went back on Synthroid a month ago and sure enough, in 3 weeks the symptoms were occurring – the swollen painful glands, the anxiety, the mind racing, over-reacting — I have to be very careful to focus my thinking. I am back to using blue ice under my left arm to get the swelling down so that my glands quit hurting. Do not ask me why this works – it has been trial and error out of necessity.

    I have been to three different doctors and none of them have a clue how this links to Synthroid. One treated me for Anxiety attacks, another for a stomach infection, and yet another thought I had indigestion that was creating chest pain. As a patient I thought they were all quacks, and less knowledgeable than I even was.

    I continue to seek a solution. I find the list of symptoms helpful.

    My glands on my chest, in my breast area are swollen, also on the top of my shoulder near the base of my neck is a swollen area about 4 x 6 inches long. It is like someone’s hand is sitting on my shoulder there – it is about that size. I started taking Flax seed oil on my doctor’s advice…. all I know is… when I recently ran out of medication for 6 weeks… the chest pain that I had had for nearly a year… STOPPED COMPLETELY. The swelling in my chest WAS DOWN COMPLETELY.

    This told me that the cause was the generic as well as the brand name Synthroid. I am having the symptoms with both of them.

    My prayers and love are with others who are suffering. No one can understand but someone like me. If I had had insurance, I would have gone to the emergency room for pain many times over in this past year. As far as I know the only solution is to stop taking my medication – but when you have low thyroid, that is not an option.

  8. kristi

    I am so confused not only from the fogginess the Synthroid I believe has attributed to but do I wanna take ARMOUR or Iodine?

  9. Michal

    Just over 2 yrs. ago I had papillary thyroid cancer, bilateral. My surgeon, GP and oncologist assured me that Synthroid, taken once a day, would get me back to “normal”. I was diagnosed with Hashimoto’s disease also and told that after total thyroidectomy it would go away. The antibodies are still here today and after months and months of taking levo, I not only didin’t feel well, I couldn’t get out of my house. My symptoms increased and I was crying every single day of my life. I’m not much of a “cryer”, so this was a surprise to me and to my family. I had to give up my job and familiy activities. My GP arranged for me to see an endo. His first line of treatment was to increase the Synthroid, despite the fact that it caused heart palpitations! He suggested we increase it, then get me to a cardiologist, get started on heart meds, then probably something for blood pressure. Mine is always normal, so that made no sense to me. Then he told me that I was depressed and that if I didn’t want to be a burden to my family, Prozac would need to be added to the growing list of meds. He also dismissed my questions about all over body pain that was getting worse all the time. I asked about a gluten free diet for the pain. He wouldn’t even hear it! I asked that he allow me to try Armour thyroid, again he dismissed my ideas. I had notes, 2 pages worth. He wouldn’t listen to a word I said. He told me that Armour and medications like it were dangerous and that if I thought my heart was racing on Synthroid, it would be so bad that Armour could kill me. He then went on to say that he’d treat my pain with a type of arthritis meds, after more tests, and perhaps something for pain. I left that day, walked to my car and sat and cried. I thought I was such a burden to my family that I should either leave or take a whole bunch of drugs. Thankfully there was enough of my “old self” present that when I got home I decided to contact a nurse practioner. She listened to me and together we came up with a plan to begin taking Armour, a variety of supplements and a prescription vitamin. After a few weeks, I felt better. Recently, however, my GP found a new problem. I have a benign mass in my lymph nodes and my parathyroids are barely working. A new endo has prescribed vit D3 and after a lot of new tests, has proclaimed me cancer free. But he too, wants to talk about going back on Synthroid. I am prepared, at my next appointment, to stand up to him. I will never stop taking Armour as long as someone will prescribe it. It stopped the hair loss, the extreme fatigue, I’m less foggy, lost weight, NO heart palps, stopped heavy feeling in arms/legs. The GF diet has completely stopped the joint pains I experienced as well.

  10. Bob

    Some people do not convert T4 as well as others and may need combination therapy for best results, either Armour or a combination of
    T4 and T3. (levothyroxine and liothyronine)

  11. Makers of Levethyroxine (Mylan) and makers of Sythroid( Abbvie) were good pills but they are tweeking them! Making them less potent! We need to tell FDA to back OFF! with natural and begin looking into synthoid and levethyroxine! They better not be being paid off by Those pharmecutcal co.

  12. I want people to understand that all those symptoms that you are suffering from is not because of your thyroid. It is because your thyroid medicine is not doing it’s job!!! It is suppost to replace thyroid hormone. If your still suffering it is not because your not in you rage on a doctors panel , itbecause ‘s

  13. sorry I meant, it’s not in your range on a doctors panel it truly is your medicine. Do you every wonder why you feel bad still when your doctor tells you your blood results are fine? It’s because the medicine is tweeked but y our body is showing enough hormone. Complaine to FDA . for audit

  14. Tell all thyroid patients to complain to the FDA call information 411 or look it up online but Tell everyone you know to complain to FDa med watch and they will begin to audit the thyroid com. only if people start doing it! They will have to change their product to be more potent. just everyone call FDA

  15. I AM TELLING YOU THESE PHARMECUTICAL COMPANIES ARE PUTING LESS THYROID HORMONE IN THE PILLS MAKING IT LESS ABSORABLE FOR SOME IDIOTS ABOUT 10 YEARS AGO COMPLAINING SAYING :IT’S TO ABSORBABLE! WHAT IDIOTS! THYROID HORMONE HAS TO BE VERY ABSORBABLE OR WE’RE GOING TO SUFFER HORRIBLE FAT PROBLEMS AND ETC.!! CALL FDA AND COMPLAIN COMPLAIN COMPLAIN. THAT IS THE FIRST STEP NOT TELLING ALL OF US, I AM GLAD YOUR DOING IT BUT IT WON’T CHANGE UNTIL YOU CONTACT THE FDA FOOD AND DRUG ADMINISTRATION AND COMPLAIN ABOUT THE THYROID PILLS. THANKS SO MUCH KIM . I AM SUFFERING TO BUT I ALWAYS HAD A PILL THAT WORKS NOT NOW! PLEASE CALL. IT’S OUR ONLY HOPE OF HAVING A MEDICINE THAT WILL ACTUALLY WORK AGAIN.

  16. “The Journey of a Thousand Miles begins with a single step.” Patient experience has found that many individuals with Thyroid issues have benefitted from dessicated thyroid medicine. See http://www.stopthethyroidmadness.com for what many other people (patients!) have to say. Good luck on your roads to wellness!

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